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#HILLOFAJOURNEY

#hillofajourney serves as a vessel to communicate the challenges, triumphs and progress of our lives. Our readers can expect honest and detailed updates on our family as we tackle Hudson's medical issues. Will it be sappy at times? Yes. Will it be brutally honest? Absolutely. Will it help our readers understand what our family is going through? That's the goal.

 

January 22, 2017

This past week was the week we have been looking forward to since finding out that Hudson's Kasai procedure failed. We knew the evaluation days would be long and information filled but nothing we couldn't handle.

We were lucky that my dad was able to fly out and be the...

January 19, 2017

They prepped us that it had to get worse before it got better. I mentally prepared myself for that - or so I thought. Seeing Hudson unable to do an essential thing like eat breaks my heart and brings tears to my eyes even now. My stomach drops like I am on a rollercoas...

January 16, 2017

Hudson's breathing and labs have improved enough for us to be moved from the ICU to the acute surgical/transplant floor.  Today we will focus on Hudson tolerating feeding by mouth so they can take out the feeding tube. 

Tomorrow starts the official transplant evalu...

January 16, 2017

Hello all, 

To say the past 48 hours have been eventful would be an understatement. The important thing is that Hudson is trending in the right direction and doing better.  A very brief highlight of what we know so far: 

Hudson was in septic shock when he was admitt...

January 14, 2017

Yesterday, Hudson woke up from his nap breathing differently than he had before. He had a temperature of 102 and started looking pale. I knew something was wrong when he didn't like my singing (because everyone who knows me knows that I have a voice of an angel)

We went...

January 11, 2017

We received our schedule for the transplant evaluation process. We will undergo a 2 day evaluation on Jan. 17th and 19th in which we will meet with various doctors, nurses, social workers, nutritionists and psychologists as well as conduct labs, ultrasounds, CAT and CT...

January 9, 2017

Since publishing this blog, I have had people wondering what has happened with Hudson and our family up to this point. There are three additional pages to this website. You will see the page options on the upper right corner of the website. If you are on your mobile, y...

January 8, 2017

As I get older, I continue to learn things about myself. Much to my surprise, my reaction to life-changing events has been to use or share my experience to help others. When my mom got sick and passed away from cancer, my response (which is still true to this day) was...

January 8, 2017

Last week we officially got the referral to Seattle Children's to explore the transplantation process for Hudson. As parents, you have a gut feeling or an intuition about your kids so it was something Morgan and I had prepared for however, when you hear the words come...

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