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update: 4/28/17: Long time, no see! (or hear)
Believe it or not, this update has been the hardest to write. In past updates, it was easy to list off the things that were wrong, what we were working on and what the next steps were. I started writing this update and my mind went blank. Why is that? It's because we are living - dare I say it - normally. The daily outings have shifted from hospital and doctor visits to neighborhood walks and playdates and the only thing we are counting these days are diapers and hours on the